Find gentle friends who are kind and empathic when it comes to flares/pain. #CreakyChats— Rachel Sauls (@Rachel_Sauls) July 11, 2017
When I first Googled my illness after being diagnosed, I remember reading from multiple bloggers that my disease would help me to "know who my real friends are," and that my social life would sort of flip upside down. I was pretty skeptical of this. I knew I would probably grow apart from my friends - I spent most of my afternoons at physical therapy during the first few years of my illness, not hanging out with my peers after school, and it became somewhat impossible to relate to other pre-teens who were not constantly thinking about the amount of fluid in their joints or their next rheumatology appointment. What I did not expect was that all of those bloggers were right. People you are not even that close to become the most reliable friends in the world, and the people you used to cling to often prove to be unequipped and sometimes unwilling to offer support. Of course, there are people I don't know well that are not kind at all when confronting chronic illness, and there are people who I know well who are absolutely lovely when dealing with what can be a sensitive subject. All I am saying is that you cannot predict these things ahead of time, no matter how well you think you know someone.
The good news is that having a chronic illness often allows me to see the best in people, whether they are a close friend or a stranger helping me to reach something in a grocery store when my elbows will not fully straighten. More importantly, I have been surrounded by friends who love me and care for me even when I feel more like arthritis than like me.
|Sisters are the best friends of all!|
1. Ask what your friend needs, or offer specific suggestions.
While "I'm always here for you," and "Let me know if you need anything," are meaningful displays of love, they can also feel a bit obligatory and it can be difficult to discern who is being sincere by saying this. It is better to ask a specific question when possible. "Would you like me to go with you to an appointment?" or "Would an ice pack help?" or "Do you need someone to keep you company right now?" all come across as more genuine and less ambiguous. If you can't find an appropriate question that is that specific, you can ask, "What can I do to support you right now?" or "What can I do to help?" Both of these are better than "Let me know how I can help," and open up a conversation rather than closing one down.
2. If you're not sure, it's okay to ask.
I think one of the biggest obstacles that prevents people from being a friend to people who are sick is uncertainty. Will talking about your friend's illness be helpful to them or a source of frustration? Does your friend want to go on a hike or is she too unwell to go? Would bringing a homemade treat be appreciated or is your friend feeling too nauseous to eat? I have great news for you: you do not have to (and should not) figure these things out on your own. You can literally just ask, and 99% of the time it is not awkward at all, it is only appreciated. For example, asking, "Would a hug help or would it hurt?" is better than not offering a hug at all, and asking "Would you like to go ice skating? I'm not sure how painful it would or wouldn't be," is better than not inviting your sick friend. Plus, by admitting that you are unsure of the right course of action to take, you offer power to your friend and acknowledge her illness in a direct and confident manner. All good things.
3. Learn about your friend's illness.
Google exists so at this point there is really no excuse for not reading up a least a bit on your friend's illness and how it affects her. If you are not sure where to start, or if you want to strategically avoid misleading or inaccurate websites, you can even shoot your friend a text like, "I'd love to read up on [juvenile arthritis] to be a little more informed about it. Are there any websites you recommend?" This is both thoughtful and direct. The more you know, the more you will be able to offer, from both a practical and emotional standpoint.
4. Offer alternatives when illness stops plans from happening.
Something that most of my friends with chronic illnesses agree on is that canceling plans with friends due to illness is one of the absolute worst feelings in the world. I remember being so excited to go shoe shopping at the mall with a friend once during my freshman year of high school, only to wake up feeling like trash. "Let's watch a movie instead," my friend texted back, and so we watched something on Netflix that was probably of even lower quality than my joints, but regardless of the merit of the movie, her offer to do something less physically daunting prevented me from isolating myself and kept me distracted from the pain. If your friend needs to cancel plans because of her illness, respect that, and try to work with her to come up with something different to do. I know it must be confusing to see someone bouncing around town one morning and too sick to move much that afternoon, but confusion about it does not change the reality of it. Chronic illness can go from being a candle in the background to a house fire in a matter of minutes.
5. Check in during the okay times.
It might be tempting only to check in with a sick person when they seem to be having a particularly tough time with their health, but checking in regularly is important in order to establish a real relationship. If you only check in during the bad times, and your friend has to respond with "I feel terrible," every time, all they are really texting you about is how terrible they feel, and never how unexpectedly good they might feel one day, and that can be a real downer. Plus, even when everything looks to be okay from the outside, they could be dealing with something really difficult healthwise and might just be keeping it under wraps. Checking in at random times might seem intrusive, but really it is very helpful. Even just saying, "Hey, how have things been with your health lately?" or "Hi friend, how have you been feeling recently?" can be a great way to check up on someone that involves very little stress and a whole lot of love.
6. Maintain expectations of your friend.
Does it hurt your feelings when your friend sugarcoats how she is feeling, since you expect honesty from her? Tell her. Is it frustrating if your friend is always canceling but never attempting to reschedule? Tell her. Do you feel like you're the only one putting effort into the friendship? Tell her. Do you feel like you are always checking up on her but she is never checking up on you? Tell her. So many problems are solved just through open conversations. You should maintain expectations from a friend who is dealing with a serious illness just like you would for your healthy friends, while understanding that at times a sick friend may not be able to do the same exact things a healthy friend can.
7. You are not a doctor. You are not a therapist. You are a friend.
Being honest with a healthy friend about how you are feeling and having that honesty met with, "Have you tried going [insert food group here]-free?" (I will probably publish a whole separate post on unsolicited medical advice soon, but consider this the condensed version) is both disappointing and distancing. Even though you may have a million suggestions or ideas about what could help your friend, I guarantee you that your friend has enough doctors already and is not yearning for you to become another one. If your friend wants medical advice, she will ask. Similarly, your friend is not looking for you to analyze all of her feelings or try to make her think differently. You are a friend, so try your best to stick with empathy. Chronic illness patients have enough people trying to figure them out and telling them what to do, so it is more helpful if you can focus on being on "their side" whenever possible.
8. Be there.
This is by far the most important tip I have to offer. Just be present, whether things are good or bad, whether you feel equipped to help or daunted by the prospect. If you have no idea what to do, just show up. They say showing up is half of the battle, but in reality it is more like 90% of the battle.
So many lovely people in this 🌎 thank you all for being great many hugs to @Spencermtackett @taylorp023 @lifeasannabelle @allison_mfoster 💙— Rachel Sauls (@Rachel_Sauls) July 11, 2017
Shout out to all of you who made it to the end of this, and thank you for your friendship! A special thanks to Spencer, Taylor, Annabelle, and Allison, who have all been particularly wonderful in my everyday fight for good health and who immediately came to mind when I made this short Twitter thread. I love you all so much! I hope this post is helpful and that we will all be kinder and gentler to our friends today than we were yesterday.